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Letting people help 

This week has been a huge change to the normal routine as I have been receiving respite everyday for several hours. 

This first week involved getting to meet the carers involved in A’s team and Master 4 team. A had a higher intensity care level so she needed more workers to rotate on her roster. 

I have spent my days enjoying talking with these lovely carers and teaching them how I care for the kids. Miss A has managed to sleep in everyday which has given me the opportunity to get to know the carers. 

It’s a weird feeling knowing I’m allowed to receive help everyday when I have gone so long doing everything the way I do myself. I felt guilty the first few days and I managed to go to lunch two days. My daughter probably had no idea I had even left for an hour. She was happily being kept comfortable and being entertained. 

Finding a carer that fits in wasn’t a hard task as I thought it would be. One key thing is they have to be kind and gentle,  Understanding of master 4 and his needs also and being themselves and being calm and relaxed. I don’t want or expect them to be full on entertaining my child. I want them to be able to care for them emotionally and physically. Just spending time hanging out is good. 

I have really enjoyed the conversations I have had this week. Been very refreshing speaking with other adults. Ha ha ha one thing you miss being very home bound with kids. 

I plan to make me time and go walking and catch up on sleep once I get to meet everyone and A gets use to everyone. 

There was way more anxiety leading up to allowing someone into the home to help care for A. My protector mode was on and I kept wanting to cancel. And before the first shift I had already changed the shift times twice. 

Being a full time carer involves so much more than we think. So much behind the scenes thinking and workings out. Dealings with stress and anxiety and then also depression and sleep deprivation. Then your normal parenting role to. Cooking and cleaning, school run, sports 

I don’t think I ever stop thinking about what I can do better or what can I change to make life easier. This could explain part of my sleeping issues to. 

I would love to say how nice it is to see these lovely new carers talking to A. To see her smile and know she has been noticed melts my heart. People don’t realise how much a simple gesture to your disabled child means to you and them. So many avoid them that they become invisible so us parents become protector defenders.

 It was so nice to see every single carer this week have talks with A and touch her or hold hands and read to her. It is exactly what we mums and dads want and need. 

Genuine care 

Thanks to them all 



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I'm a mum of four who loves my kids but juggles some amazingly hard battles with disability and illness with two of my children. Sleep deprivation, time and being Homebound you will hear about many issues I face daily but mostly with a positive view. I just need somewhere to vent So thanks in advance if you even bother to read my mumble jumble

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