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Busy times 

It has been such a busy time I have yet to post in a long time. 

Life is good and life is busy. Kids have been well and we are enjoying school holidays. Winter time and it’s a wet winter. 

Ava has turned 8 which was such a wonderful celebration and one I thought would never happen. 

   
 
We have had time to go to movies and enjoy the daily day to day life. Hospital visit are minimal and Avas port is going well. 

Master W is going fantastic and so full of energy. He has loved attending school yet missed a lot this winter due to catching many common colds. 

Parents don’t realise how sending their sick kids to school can seriously have major consequences for our chronic illness kids. I wish they could sometimes stop and see how one cough or cold could lead our child into a Icu department and on life support. 

  
I have managed to find time for myself and start looking after myself. This year I have lost 30kilos and plan to start a more active healthy and less depressed life. Being home more than in hospital is having such a better effect on the whole family. We are all coping  better and have room to breathe. 

I always say : enjoy the good times as we have no idea what’s around the corner 

Ava is on new medication plans to help reduce one med up the other it lead to constant seizures so I had to stop and wait and watch at those doses then attempt again but slower. So if this works it will help with her current bone health and platelet levels. 

Anyway short post but a positive one 

Thanks for reading  

 

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I'm a mum of four who loves my kids but juggles some amazingly hard battles with disability and illness with two of my children. Sleep deprivation, time and being Homebound you will hear about many issues I face daily but mostly with a positive view. I just need somewhere to vent So thanks in advance if you even bother to read my mumble jumble

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