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Goal in sight 

We have a date !!! 

A surgery date, 8th march so not long to go. The surgeon worked so hard at getting a time slot long enough to get this done a lot earlier and knowing more work than anticipated is required. 

Surgery is extremely dangerous but living with this amount of pain daily with such instability in the hip is torture. There isn’t one single move or stretch that Ava can do without creating massive pain or re dislocation. It literally is in and out. 

We have worked out now that no amount of meds will take pain away so just trying to manage now as best we can. She can go a long time some days without hurting as much but then it catches her. Trying to keep a steady amount of control on meds is a must. 

We are still waiting results on the bloods Ava and I had done last week to find out what is going on with the clotting. I have always had complications after surgeries bleeding and slow clotting so would be interesting if she has the same. 

We have wonderful help with us currently. My mother and my grandmother helping look after wil as he also has been having minor surgeries and follow up cardiac reviews and juggling him with school to. He attends hospital school so I’m glad he is still close by. Nice to get some help as I haven’t had any for years. My mum and her partner helped heaps when Ava and wil were little as I couldn’t juggle the big kids and couldn’t pull them out of school for extended periods. 

People don’t realise how many aspects of life are affected when you have sick or disabled children. Ones hard then twos harder, then top that with two healthy siblings.. I know people have it harder than that and I am thankful for what I have.  

I’m grateful for the help and don’t feel as isolated. I do miss the kids but this time It seems more manageable with the available help. 

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I'm a mum of four who loves my kids but juggles some amazingly hard battles with disability and illness with two of my children. Sleep deprivation, time and being Homebound you will hear about many issues I face daily but mostly with a positive view. I just need somewhere to vent So thanks in advance if you even bother to read my mumble jumble

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