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Celebrating small victories

Today whilst having lunch with eldest daughter I realised what we were talking about wasn’t the normal kind of conversation many have.

We stopped both staring at each other and just laughed and laughed almost to tears

We were celebrating how wonderful it was that Ava had done a poo yesterday and the fact she had done it while sitting in the wheelchair.

She has so many issues and pooping is huge: so eating san churros and talking poo seems fine:

That’s the thing with chronic illness you really have a different level of what’s important and your priority list is fully different to a normal person.

I also find myself joking inappropriately to normal people who don’t get the jokes we make at home- maybe we are all mental now living in such a highly stressful unpredictable life we all went crazy and make everything funny now. Well if that’s the case good shit I say!

Rather laugh than cry ….

I really think I swear a lot more to nowadays. I’m so over being so polite all the time ha ha ha

I was so annoyed today at the shops as we couldn’t get through any isle with the wheelchair – so many shops we had to avoid. Is this because they don’t want our business or we just don’t fit in with society.

So pissed I was. I’m over it now as I don’t have the energy to keep being pissed off but at the time I’m almost ready to call and complain to a manager but it’s not there fault. We are to odd ones out and not all things and places should adapt to us being different. I say us as Ava and myself are always together and I’m the operator without a licence of her new electronic wheelchair. Watch out I can’t drive very well!!!

As long as we manage time out and about every week life is good.

This entry was posted in: Disability


I'm a mum of four who loves my kids but juggles some amazingly hard battles with disability and illness with two of my children. Sleep deprivation, time and being Homebound you will hear about many issues I face daily but mostly with a positive view. I just need somewhere to vent So thanks in advance if you even bother to read my mumble jumble

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